Eurordis has just released its official video for Rare Disease Day 2016, that will be celebrated on 29th February. Rare diseases are not “rare” at all, since there are more than 6,000 rare diseases. What they all have in common is some little special moments. This is where the Eurordis video focuses on.
This year, Eurordis is demonstrating the importance of the Patient Voice as people living with a rare disease and their families are working to bring about change needed to improve their lives.
The 2016 video allows us all to share a special moment between Elisa, who is living with Williams syndrome, and her parents. Everybody experiences special moments with relatives, children, friends and colleagues. For people living with or affected by a rare disease, the emotion during these moments can be very strong as they leave behind the challenges they face on a daily basis.